Friday, June 11, 2010

Friday night

Well, we've had a busy day. Sara got her fluid drained again today, and again it helped her quite a bit. What the doctors have told us is that this is a bandaid and not a final solution. It's to help her to breathe, but not to stop her chest from filling up.

So here's where we are at. We'll be doing a vascular system check (can't remember which machine) to check for blood clots. They don't think they'll find anything, but just wanted to rule out other potentials.

Tammy, Sara's Mom, came in today, and with her hospital prowess has gotten some good answers and direction to go from here. We are going to run the vascular test tomorrow. If we don't get a definitive answer from that, then we'll most likely try to transport her up to Mayo Clinic in Rochester, MN. It seems she has a very rare condition, that the local doctors are having trouble diagnosing. In fact, they seem to be looking up info from one previous case of this being recorded. It was, handled up at Mayo. They may give us the same course of action for treatment, but we want to try to have the researchers up there at least have a look. Since they seem to be the only ones that have seen something like this.

Sara is doing well tonight, and enjoyed having guests come visit her. If you'd like to come visit her this weekend, she'd appreciate it. For now, have a good night, and we are praying for guidance going forward. Please know, that we have had a rough week, but the news of a possible solution coming soon has really lifted Sara's spirits, and is very encouraging to all of us.

Oh, and one other thing. When we were getting Sara's fluids drained, the nurse was moving linens around and accidentally hit Sara in the head with a pillow. She couldn't stop laughing for a good 10 minutes. "She hit me with a pillow. Who does that?" was her response. It's good to see her laughing through this tough time. :)

2 comments:

  1. Tim and Sara,
    Sorry to hear Sara is feeling so unwell. Mayo is a great clinic though. I am actually in the Twin Cities right now dealing with so cardiac issues with my father. Leaving Sunday though so probably won't cross paths although it would be nice for mutual support.
    Jen and I will keep Sara in our thoughts and prayers. Please let use know if there is anything we can do. Can't probably be much help from New Hampshire but if you can think of something we can do it! Sending wishes for a swift diagnosis and recovery.

    Peter and Jen Stevens

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  2. Hey guys! Miss u both. Wish I was there. The nurse was probably just trying to get in on the blanket and pillow party...DUH! <3 Cat

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